Congenital and Inherited Disorders
Iowa Registry for Congenital & Inherited Disorders
Iowa Neonatal Metabolic Screening Program (INMSP)
Healthcare Practitioner Manual
Neuromuscular and Related Disease Program
Regional Genetic Consultation Service
Stillbirth Surveillance and Prevention Programs
Iowa Code, Rules and Regulations
What is the Neuromuscular and Related Genetic Disease Program?
The Neuromuscular and Related Genetics Disease Program provides comprehensive health services for individuals and families with a variety of neuromuscular and related disorders including Duchenne muscular dystrophy, Becker muscular dystrophy, limb-girdle muscular dystrophy, congenital muscular dystrophy, spinal muscular atrophy, myasthenia gravis, charcot-marie-tooth, and Friedreich's ataxia. Additionally, the program gives educational presentations for families, healthcare providers, educators and others throughout Iowa.
What services are provided?
Where are the clinics located?
Davenport, Des Moines, Dubuque, Iowa City, Mason City, Sioux City and Waterloo.
How do I make a referral?
Referrals are accepted from physicians, nurses, social workers, teachers, family members and others. To make an appointment for neuromuscular services, inquire about educational opportunities, or to find out more, please call 319 356-1851.
What is the cost for the services?
Insurance companies usually reimburse for medical consultation, nursing services, physical therapy, and respiratory therapy recommendations. Third party payers will be billed if coverage is available. Additionally, the Muscular Dystrophy Association offers financial assistance to families who qualify.
Where do I get more information?
