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Center for Congenital and Inherited Disorders

Neuromuscular and Related Genetic Disease Program

What is the Neuromuscular and Related Genetic Disease Program?

The Neuromuscular and Related Genetics Disease Program provides comprehensive health services for individuals and families with a variety of neuromuscular and related disorders including Duchenne muscular dystrophy, Becker muscular dystrophy, limb-girdle muscular dystrophy, congenital muscular dystrophy, spinal muscular atrophymyasthenia gravis, charcot-marie-tooth, and Friedreich's ataxia. Additionally, the program gives educational presentations for families, healthcare providers, educators and others throughout Iowa.

What services are provided?

  • Diagnostic evaluation
  • Management of neuromuscular healthcare concerns
  • Patient and family education
  • Supportive patient and family services
  • Physical therapy evaluation and recommendations
  • Access to research opportunities
    The Muscular Dystrophy Association approves service provision by the Neuromuscular and Related Genetic Disease Program.

Where are the clinics located?

Davenport, Des Moines, Dubuque, Iowa City, Mason City, Sioux City and Waterloo.

How do I make a referral?

Referrals are accepted from physicians, nurses, social workers, teachers, family members, and others. To arrange an appointment for neuromuscular services or inquire about educational presentations, call 319-353-6200.

  • Katherine Mathews, MD
    Neuromuscular Program Director
    Division of Child Neurology
    Department of Pediatrics
    200 Hawkins Drive
    Iowa City, Iowa 52242
    319-356-7726 (ph)
    319-384-8818 (fax)
  • Christina Trout, RN, MSN
    Advanced Practice Nurse
    Neuromuscular Program Department of Pediatrics
    200 Hawkins Drive
    Iowa City, Iowa 52242
    319-353-6200 (ph)
    319-384-8818 or 319-356-4855 (fax)

What is the cost for the services?

Insurance companies usually reimburse for medical consultation, nursing services, physical therapy, and respiratory therapy recommendations. Third party payers will be billed if coverage is available. Additionally, the Muscular Dystrophy Association offers financial assistance to families who qualify.

  • Iowa Neuromuscular and Related Disease Program Needs Assessment Report for the State of Iowa, June 2013;  View the report  Adobe Acrobat Document, click here to get the Adobe Acrobat Reader

Where do I get more information?