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Center for Congenital and Inherited Disorders

Hemophilia Advisory Committee

The 82nd Iowa General Assembly established the Hemophilia Advisory Committee with the intent to establish an advisory committee to provide recommendations on cost-effective treatment programs that enhance the quality of life of those afflicted with hemophilia and contain the high cost of that treatment.

The Iowa Department of Public Health Center for Congenital and Inherited Disorders is responsible for the activities of the Hemophilia Advisory Committee (HAC).

Responsibilities of the HAC include reviewing and making recommendations to the director concerning, but not limited to, the following:

  • Proposed legislative or administrative changes to policies and programs that are integral to the health and wellness of individuals with hemophilia and other bleeding and clotting disorders.
  • Standards of care and treatment for persons living with hemophilia and other bleeding and clotting disorders.
  • The development of community-based initiatives to increase awareness of care and treatment for persons living with hemophilia and other bleeding and clotting disorders.
  • Facilitating communication and cooperation between persons with hemophilia and other bleeding and clotting disorders.

Senate File 548 defines membership on the HAC, and appointments to the committee are made by the director.

All meetings are open to the public.

Legislation approved by the 83rd General Assembly, HF2526, amends Iowa Code 135N regarding the HAC: establishes it as a committee that reports to the Congenital and Inherited Disorders Advisory Committee; meets as often as deemed necessary; and requires the committee to coordinate meeting schedules and staffing with the Congenital and Inherited Disorders Advisory Committee, to the maximum extent possible.

Please click on the following links for more information.

 

For more information contact:

Kimberly Noble Piper
State Genetics Coordinator
Center for Congenital and Inherited Disorders
321 E. 12th street
Lucas State Office Building
1-800-383-3826
515-281-6466